Alopecia Update…

2014-08-25 17.01.17_Tony_Vignette_SwollenI have gotten a few requests to provide an update to this post, Confidence, so I thought I would happily oblige!

Dealing with Alopecia has not been easy. As mentioned, physically it is virtually harmless, but emotionally and mentally it is absolutely devastating.  For those of you that don’t know, alopecia has no known cause and no known cure. It occurs when your immune system decide to start attacking the hair follicles in your body. It can attack every hair follicle on your body (alopecia universalis), it can attack only the hair on your head (alopecia totalis) or, in my case, patches of hair loss (alopecia areata).

My doctor referred me to one of the leading physicians in Vancouver, Dr. Elizabeth Ross. The diagnosis was made and we opted for steroid injections into the bald patch and it worked! The regrowth began and I was over the moon. I was getting ready for my second to last appointment with Dr. Ross when two tiny spots were found towards the front of my head. It has been decided that later this month I will undergo a scalp biopsy. There are going to take two 4mm holes of my scalp for biopsy. In addition to the alopecia there appears to be something else going on, which we aren’t quite clear on, so to be on the safe side, biopsy is the best option.

This hasn’t been easy to deal with, with the injections comes the pain of feeling like a million hot pokers are being driving into your scalp. When they are complete it is usually followed by an afternoon of a not so pleasant headache. Stress is a huge trigger, so I have to find ways that would help me take my mind off of it, ways to help me cope and feel like not everyone is starting at my bald spots. I have a lovely collection of scarves, headbands, hats and I have clip in hair extensions. My favorite is the extensions, because they add the volume back to my hair that I have lost and I instantly feel less naked and a bit of my confidence is restored.

I am not saying steroid injections, scarves and extensions are what will work for everyone, but it is what has worked for me. If I am destined to have no hair on top of my head I am learning to be OK with that. I will be the woman with no hair, but wicked earrings, some fun wigs, and amazing eye makeup. My beauty will not be defined by my hair, my breasts or my ability to bear children. My beauty will be defined by how I feel on the inside about the kind of woman that I wanna be 🙂

For the record I am taking applications for anyone wishing to apply for the position of hand squeezer when I go for my biopsy later this month!

2 thoughts on “Alopecia Update…

  1. Pingback: Down and Dirty 30 – Day 9 | evershrinkingdiva

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